The Self-help Resource Center for Vision LossInformation on Eye Diseases & Disorders
Choroideremia Research Foundation, Inc.
23 East Brundreth Street
Springfield, MA 01109
413-781-2274
www.choroideremia.org
E-mail contacts
The Choroideremia Research Foundation, Inc. is an international, non-profit organization dedicated to raising funds to find a treatment or cure for Choroideremia, a rare inherited retinal degenerative disease that causes blindness.
Comprehensive Macular Degeneration Information and Resources
Medical and Anatomical Definitions and Illustrations
To help family members and friends better understand the visual and functional effects of AMD, Macular Degeneration Support has created an online simulation gallery, entitled Through Our Eyes: How People with AMD See.
Publications, Organizations, and Support Services for Adults with AMD
Since increasing numbers of adults and older adults experience various forms of AMD, there are many consumer groups, online forums, and publications that provide ongoing information, resources, and support:
Books
- Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight by Lylas G. Mogk, M.D. and Marja Mogk, Ph.D.
- The First Year: Age-Related Macular Degeneration: An Essential Guide for the Newly Diagnosed by Daniel L. Roberts
- Living Well with Macular Degeneration: Practical Tips and Essential Information by Bruce P. Rosenthal, O.D. and Kate Kelly
Major associations by and for people with macular degeneration
- AMD Alliance International: Provides a summary of all current and proposed treatments for wet and dry AMD, in addition to information on early detection, timely treatment, comprehensive rehabilitation and support services, and prevention strategies.
- The American Macular Degeneration Foundation: Works for the prevention, treatment, and cure of macular degeneration through raising funds, educating the public, and supporting scientific research. Publishes "In the Spotlight," a quarterly newsletter that is provided for a $25.00 donation to the Foundation.
- The Association for Macular Diseases: Home of The Association for Macular Diseases and The Macula Foundation, Inc. The Association publishes an aggregated news feed with updates on medical advances and research in macular diseases. The Macula Foundation, Inc. supports basic and clinical research in vitreous, retinal and macular diseases.
- Eye on AMD: Provides information on AMD, resources to help find a retinal specialist, and information about support groups.
- The Eye Digest: A publication of the University of Illinois Eye and Ear Infirmary that provides information on a wide range of eye diseases and disorders, including macular degeneration, diabetic eye disease, glaucoma, cataract, dry eye, and low vision.
- The Macula Vision Research Foundation: A national non-profit organization that provides funding to scientists and clinicians to study retinal diseases. MVRF shares news about breakthrough research and treatment options via email, web site, and a quarterly newsletter.
- Macular Degeneration Foundation, Inc.: A non-profit organization, founded by an AMD patient to inform consumers and support research. Publishes "The Magnifier," a free newsletter distributed via email and regular mail that highlights breaking news, clinical trials, and Internet resources.
- Macular Degeneration Partnership: Publishes a monthly online newsletter and e-mail subscription service. Provides information and resources on experimental treatments, clinical trials, and macular degeneration resources, as well a free AMD Toolkit that contains a large print information packet on AMD, low vision rehabilitation, nutrition, and a magnetic Amsler Grid.
- Macular Degeneration Research: Provides information about macular degeneration, its symptoms and risk factors, treatment options, and how to live with or care for someone with the disease.
- Macular Degeneration Support: Provides information and educational publications on AMD and medical advances, Internet support groups (including 100+ affiliate groups worldwide), a transportation database and search function, extensive online resources, monthly webcasts, and a public awareness program to reach individuals who are without Internet access.
- WebRN - MacularDegeneration.com: A comprehensive and current web site on macular degeneration, including prevention, treatment, diet and nutrition, clinical trials, and low vision aids and resources.
Eye Care and Low Vision Services
- Finding the type of eye care professional who is right for you
- The difference between a vision screening and an eye examination
- What is a low vision examination?
- How does AMD affect everyday activities?
- What are low vision optical devices?
- What are low vision non-optical devices?
- What is eccentric viewing training (from Vision World Wide, Inc. and Macular Degeneration Support)
- Does Medicare provide funding for vision-related rehabilitation?
Vision-Related Rehabilitation Services and Resources
- An explanation of vision rehabilitation and related services
- The types of professionals who provide vision rehabilitation services
- How do I pay for vision rehabilitation services?
- Reading and writing products and services for adults who are blind or have low vision
- Self-help and support groups for adults who are blind or have low vision
Read more about the topic of low vision, blindness, and visual acuity. For a definition of medical and anatomical terms, see VisionAWARE's Glossary.
Also, be sure to visit VisionAWARE's Question & Answer links for more information on Personal Self-Care, Home Management, and Home Modifications.
Emerald Education Systems
866-439-1302 (US/Canada)
410-439-1302 (International)
410-439-1303 (Fax)
www.emeraldeducationsystems.com
Contact information and email
The mission of Emerald Education Systems is to provide affordable, convenient and authoritative instructional online courses to health care professionals and individuals with a current focus in low vision rehabilitation. The primary target audiences are occupational and rehabilitation therapists, educators, optometrists, ophthalmologists and ophthalmic and paraoptometric technicians.
More Information About Cataracts and Cataract Surgery
Find Online Resources for More Information About Cataracts and Cataract Surgery
- All About Vision - Cataract signs and symptoms, causes, and treatment, with illustrations of the functional visual effects of cataracts.
- DocShop.com - A cataract surgery guide, including information about symptoms, types, diagnosis, and treatment
- The Macula Center - Also about cataracts, including causes, prevention, surgery, and illustrations of the functional visual effects of cataracts
- MayoClinic.com – Cataracts: An introduction, signs and symptoms, causes, risk factors, when to seek medical advice, treatment, self-care, and prevention
- Medline Plus - An interactive tutorial about cataracts
- National Eye Institute - Facts about cataracts: A definition, causes and risk factors, symptoms and detection, treatment, current research
- National Institutes of Health: Senior Health - Cataracts: Definition, development and risk factors, symptoms and detection, treatment and prevention, frequently asked questions
- StLukesEye.com - Cataracts defined, with illustrations of the functional visual effects of cataracts. Includes information on cataract surgery, including selecting an implant and frequently asked questions
- Vision Channel - An overview of cataracts, including types, causes, signs and symptoms, and diagnosis
- West Texas Eye Associates - An explanation of cataracts and cataract surgery, with illustrations of the functional visual effects of cataracts
National Eye Institute
National Eye Institute
2020 Vision Place
Bethesda, MD 20892-3655
301-496-5248
E-mail: 2020@nei.nih.gov
The National Eye Institute (NEI) was established by Congress in 1968 to protect and prolong the vision of the American people. As one of the Federal government's National Institutes of Health (NIH), the NEI conducts and supports research that helps prevent and treat eye diseases and other disorders of vision. Part of the NEI mission is to develop public and professional education programs that help prevent blindness, reduce visual impairment, and increase awareness of services and devices that are available for people with low vision.
National Keratoconus Foundation
6222 Wilshire Blvd., Suite 260
Los Angeles, CA 90048
310-623-4466
310-623-1837 (Fax)
www.nkcf.org
E-mail: info@nkcf.org
The National Keratoconus Foundation (NKCF) is an outreach program of the Discovery Eye Foundation. The mission of NKCF is to advance the awareness and treatment of keratoconus through education and information, research, and support. NKCF serves individuals diagnosed with keratoconus and their families.
Other Vision-Related Rehabilitation Services for Adults with Diabetic Retinopathy
Although there is not — as of yet — a cure for diabetes and diabetic retinopathy, vision-related rehabilitation services and assistive devices can help individuals with diabetic retinopathy to use their remaining vision safely and effectively. Visit the following links from VisionAWARE to learn more about eye conditions, vision-related rehabilitation services and professionals, low vision and low vision eye examinations, optical and non-optical low vision devices, and payment options for vision-related rehabilitation:
General Information and Resources
- An overview of eye conditions and vision-related rehabilitation services and professionals
- Resources for vision-related rehabilitation products and services
Eye Care and Low Vision Services
- Finding the type of eye care professional who is right for you
- What is a low vision examination?
- How does diabetic retinopathy affect everyday activities?
- What are low vision optical devices?
- What are low vision non-optical devices?
Vision-Related Rehabilitation Services and Resources
- An explanation of vision-related rehabilitation and services
- The types of professionals who provide vision-related rehabilitation services
- How do I pay for vision-related rehabilitation services?
- Self-help and support groups for adults who are blind or have low vision
Also, be sure to visit VisionAWARE's Question & Answer links for more information on Personal Self-Care, Home Management, and Home Modifications.
The Eye Digest
University of Illinois Eye & Ear Infirmary
1855 W. Taylor Street M/C 648
Chicago, IL 60612
312-996-6590
www.agingeye.net
E-mail: sjain@eyedigest.com
A publication of the University of Illinois Eye and Ear Infirmary that provides information on a wide range of eye diseases and disorders, including macular degeneration, diabetic eye disease, glaucoma, cataract, dry eye, and low vision.
Copyright ©2011 by American Foundation for the Blind. All rights reserved.


