The Self-help Resource Center for Vision Loss
Comprehensive Macular Degeneration Information and Resources
Medical and Anatomical Definitions and Illustrations
To help family members and friends better understand the visual and functional effects of AMD, Macular Degeneration Support has created an online simulation gallery, entitled Through Our Eyes: How People with AMD See.
Read more about the topic of low vision, blindness, and visual acuity. For a definition of medical and anatomical terms, see VisionAWARE's Glossary.
Eye Care and Low Vision Services
- Finding the type of eye care professional who is right for you
- The difference between a vision screening and an eye examination
- What is a low vision examination?
- How does AMD affect everyday activities?
- What are low vision optical devices?
- What are low vision non-optical devices?
- What is eccentric viewing training (from Vision World Wide, Inc. and Macular Degeneration Support)
- Does Medicare provide funding for vision-related rehabilitation?
Vision-Related Rehabilitation Services and Resources
- An explanation of vision rehabilitation and related services
- The types of professionals who provide vision rehabilitation services
- How do I pay for vision rehabilitation services?
- Reading and writing products and services for adults who are blind or have low vision
- Self-help and support groups for adults who are blind or have low vision
Also, be sure to visit VisionAWARE's Question & Answer links for more information on Personal Self-Care, Home Management, and Home Modifications.
Publications, Organizations, and Support Services for Adults with AMD
Since increasing numbers of adults and older adults experience various forms of AMD, there are many consumer groups, online forums, and publications that provide ongoing information, resources, and support:
Books
- Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight by Lylas G. Mogk, M.D. and Marja Mogk, Ph.D.
- The First Year: Age-Related Macular Degeneration: An Essential Guide for the Newly Diagnosed by Daniel L. Roberts
- Living Well with Macular Degeneration: Practical Tips and Essential Information by Bruce P. Rosenthal, O.D. and Kate Kelly
Major associations by and for people with macular degeneration
- AMD Alliance International: Provides a summary of all current and proposed treatments for wet and dry AMD, in addition to information on early detection, timely treatment, comprehensive rehabilitation and support services, and prevention strategies.
- The American Macular Degeneration Foundation: Works for the prevention, treatment, and cure of macular degeneration through raising funds, educating the public, and supporting scientific research. Publishes "In the Spotlight," a quarterly newsletter that is provided for a $25.00 donation to the Foundation.
- The Association for Macular Diseases: Home of The Association for Macular Diseases and The Macula Foundation, Inc. The Association publishes "Eyes Only," a quarterly newsletter with updates on medical advances and research in macular diseases. The Macula Foundation, Inc. supports basic and clinical research in vitreous, retinal and macular diseases.
- The Eye Digest: A publication of the University of Illinois Eye and Ear Infirmary that provides information on a wide range of eye diseases and disorders, including macular degeneration, diabetic eye disease, glaucoma, cataract, dry eye, and low vision. Of special interest are the following sections that address macular degeneration: types and risk factors, treatment, clinical trials and research, and Lucentis information.
- Macular Degeneration Foundation, Inc.: A non-profit organization, founded by an AMD patient to inform consumers and support research. Publishes "The Magnifier," a free newsletter distributed via email and regular mail that highlights breaking news, clinical trials, and Internet resources.
- Macular Degeneration Partnership: Publishes a monthly online newsletter and e-mail subscription service. Provides information and resources on experimental treatments, clinical trials, and macular degeneration resources, as well a free AMD Toolkit that contains a large print information packet on AMD, low vision rehabilitation, nutrition, and a magnetic Amsler Grid.
- Macular Degeneration Research: Provides information about macular degeneration, its symptoms and risk factors, treatment options, and how to live with or care for someone with the disease.
- Macular Degeneration Support: Provides information and publications on AMD and medical advances, an Internet support group, a transportation database and search function, extensive online resources, and a public awareness program to reach individuals who are without Internet access.
- WebRN - MacularDegeneration.com: A comprehensive and current web site on macular degeneration, including prevention, treatment, diet and nutrition, clinical trials, and low vision aids and resources.
© Copyright 2009 AWARE - Associates for World Action in Rehabilitation & Education