Publications, Organizations, and Support Services for Adults with AMD

Since increasing numbers of adults and older adults experience various forms of AMD, there are many consumer groups, online forums, and publications that provide ongoing information, resources, and support:

Books

• Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight by Lylas G. Mogk, M.D. and Marja Mogk, Ph.D.

• The First Year: Age-Related Macular Degeneration: An Essential Guide for the Newly Diagnosed by Daniel L. Roberts

• Living Well with Macular Degeneration: Practical Tips and Essential Information by Bruce P. Rosenthal, O.D. and Kate Kelly

Major associations by and for people with macular degeneration

• AMD Alliance International - Provides a summary of all current and proposed treatments for wet and dry AMD, in addition to information on early detection, timely treatment, comprehensive rehabilitation and support services, and prevention strategies.

• The American Macular Degeneration Foundation - Works for the prevention, treatment, and cure of macular degeneration through raising funds, educating the public, and supporting scientific research. Publishes " In the Spotlight," a quarterly newsletter that is provided for a $25.00 donation to the Foundation.

• American Society of Retina Specialists - Provides the Find A Retina Specialist online search tool

• The Association for Macular Diseases - Home of The Association for Macular Diseases and The Macula Foundation, Inc. The Association publishes "Eyes Only," a quarterly newsletter with updates on medical advances and research in macular diseases. The Macula Foundation, Inc. supports basic and clinical research in vitreous, retinal and macular diseases.

• The Eye Digest - A publication of the University of Illinois Eye and Ear Infirmary that provides information on a wide range of eye diseases and disorders, including macular degeneration, diabetic eye disease, glaucoma, cataract, dry eye, and low vision. Of special interest are the following sections that address macular degeneration: types and risk factors, treatment, clinical trials and research, and Lucentis information.

• MacDegen.com - Provides the latest scientific information regarding the prevention and treatment of macular degeneration through MacDegenTM Science, a monthly electronic newsletter.

• Macular Degeneration Foundation, Inc. - A non-profit organization, founded by an AMD patient to inform consumers and support research. Publishes " The Magnifier," a free newsletter distributed via email and regular mail that highlights breaking news, clinical trials, and Internet resources.

• Macular Degeneration International - Provides a quarterly report with research updates and information about clinical trials and seminars throughout the country.

• Macular Degeneration Partnership - Publishes a monthly online newsletter and e-mail subscription service. Provides information and resources on experimental treatments, clinical trials, and macular degeneration resources, as well a free AMD Toolkit, which contains a large print information packet on AMD, low vision rehabilitation, nutrition, and a magnetic Amsler Grid.

• Macular Degeneration Support - Provides information and publications on AMD and medical advances, an Internet support group, a transportation database and search function, extensive online resources, and a public awareness program to reach individuals who are without Internet access.