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Frequently Asked Questions: Challenges of Coping with Vision Loss

Vision loss can bring new challenges that you might not be able to imagine until you are placed in a specific situation. Below you'll find some commonly asked questions.

If you or someone you know is facing new challenges not covered here, use the Comments section to add your own questions.

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low vision

i have a six year old son that has low vision my question is how do i encourage him to do more things for himself. he hs gotten to use to the idea of me finding everthing for him and i now realise he doesnt really want to struggle with finding his toys, or anything i ask him to get.

Re: low vision

Hi and welcome to our VisionAWARE family. Although our web site typically offers information about adult and older adult vision loss, I do understand your dilemma very well. Many parents of visually impaired children experience the same issue you've raised. I give you much credit for reaching out and being proactive about the issue of your son "doing more things for himself." Your question is a good and important one.

You didn't mention where your son attends school or what kind of educational placement he is in, which would help me answer your question more fully. Often, I will recommend a parent/teacher meeting, in which you can share your observations as a mother (and I always welcome a mother's input!) with the classroom teacher and work on a way to coordinate your efforts and give your son consistency in terms of your expectations regarding independence.

It's also helpful to interact with other parents of visually impaired children and share information, resources, and tips/techniques. These are several resources that I highly recommend:

The National Association for Parents of Children with Visual Impairments (NAPVI)
http://www.spedex.com/napvi
You can network with other parents and participate in message and discussion boards.

Family Connect: For Parents of Children with Visual Impairments
http://www.familyconnect.org
A joint project between the American Foundation for the Blind and NAPVI that offers support group information, networking, resources, and message boards.

Texas School for the Blind and Visually Impaired
http://www.visionaware.org/TSVBI
Perkins School for the Blind
http://www.visionaware.org/perkins_school_for_the_blind
Texas School for the Blind and Perkins School for the Blind have created excellent web sites that provide a wealth of information about the needs of blind and visually impaired children.

We also have a section on the VisionAWARE web site that is devoted to bloggers who are blind, visually impaired, or have low vision:
http://www.visionaware.org/blind_bloggers_blogs_by_people_who_are_blind_...
While most of these bloggers are adults, we do link to several blogs of parents who have visually impaired children. One blog that I especially recommend is written by Gavin Robert's mother: http://gavinrobert.blogspot.com. I'm guessing you would find her blog and her insights to be quite helpful.

I'm also hoping that other readers will respond and add their own experiences, resources, and comments. If you need more information, please let me know. As I mentioned before, your question is an important one that is shared by many other parents of children with visual impairments.

Maureen Duffy, CVRT
Editorial Director
VisionAWARE.org

Learning strategies for organization can start EARLY!

I'd say that in general, learning how to categorize and organize things, including toys, can start as soon as someone wants to find something, but doesn't know where it is or where he/she put it last. Part of learning organization is gaining control of where objects are placed, and knowing that things will stay where they are put, within reasonable limits. Obviously if toys are all over the floor, this will be a hazzard for everyone in the family, and is a good opportunity to discuss, name, and have the child decide on and put the toy in a place where it will belong. I remember when I was little, my parents put up shelves along two walls of my room, all of which I could reach. I quickly learned that if I left a toy out where it would be in someone else's way, it would likely be moved. If I put it in my room, I knew where it was, and could usually find it. Make sure that all siblings, sighted or blind, learn to mention to one another if they borrow something, as looking for something that's not there can be rather frustrating at times.

If a child is not used to tactually or visually exploring his or her surroundings, part of teaching organization skills is learning to give very specific spatial directions and telling a child where something is, without necessarily retrieving it for him or her. This will probably take more time and communication early on, but in the long run, teaching exploration and organization skills will help build a good foundation for lots of other skills down the road.

Tina E

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Have a question about coping with vision loss? Post your questions here in the comments section.

 

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