National Organization for Albinism and Hypopigmentation - AFB Directory Profile

General Information

National Organization for Albinism and Hypopigmentation
PO BOX 959
East Hampstead, NH 03826-0959
(603) 887-2310 (Local)
(603) 887-2310 (Fax)
(800) 473-2310 (Toll-Free)
info@albinism.org
http://www.albinism.org

Brief Description

NOAH is a genetic support group that acts as a conduit for accurate and authoritative information about all aspects of living with albinism. NOAH sponsors conferences, meetings and camps where people with albinism and their families in the U.S. and Canada can find acceptance, support, and fellowship. Information sources provided by NOAH include an extensive website which includes resource library, a quarterly magazine, two parent books and a library of webinars on YouTube.

Hours of operation: 24-hour voice mail.
Number of staff: 1.5 FTE
Staff description: Operated primarily by members on a volunteer basis. NOAH contracts with two part time staff.
Geographic area served: Primarily United States and Canada, but no restrictions.
Publications: Informational bulletins, quarterly magazine, and parent books: Raising a Child with Albinism: A Guide to the Early Years and Raising a Child with Albinism: A Guide to the School Years

Staff

NOAH Administrative Services, General Contact, (603) 887-2310, info@albinism.org
Michael McGowan, Executive Director, mmcgowan@albinism.org

Services Offered

Services for Adults

  • Braille/Electronic/Audio/Large Print Production
    • Informational bulletins and quarterly magazines.
  • Counseling
    • Offers self-help groups.
  • Information and Referral
    • Offers programs to enhance public awareness.
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