The Marfan Foundation - AFB Directory Profile

General Information

The Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
(516) 883-8712 (Local)
(516) 883-8040 (Fax)
(800) 862-7326 (Toll-Free)

Brief Description

Hours of operation: Mon.-Fri. 8:00 AM-5:00 PM.
Clients served on average per year: 25,000
Number of staff: 21
Staff description: President/CEO, administrative staff, Directors of the following: Support Services, Programs & Education, Development, Research & National Volunteer Network
Geographic area served: USA & international
Publications: An Overview of the Marfan Syndrome (book), A Booklet for Teachers (booklet), Do You Know Marfan? (video), Medical Series brochures, Emergency Room Campaign materials

Services Offered

Services for Adults

  • Information and Referral
    • Provides printed information and videos about Marfan Syndrome and information on clinics that treat Marfan Syndrome.
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