Aniridia Foundation International - AFB Directory Profile

General Information

Aniridia Foundation International
c/o University of Virginia Department of Ophthalmology
P.O. Box 800715
Charlottesville, VA 22908-0715
(434) 243-3357 (Local)
register@aniridia.net
http://www.make-a-miracle.org

Brief Description

We provide help for those born with aniridia syndrome through research, education and support of those affected and their families. Host biennal conferences bringing together physicians, researchers and families with aniridia syndrome for educational presentations on the latest information, social events for networking and support, clinic to see the Experts, and data collection to advance research. This is a membership organization. If you or a family member have aniridia, if you are a doctor or researcher interested in helping / volunteering, visit our website www.make-a-miracle.org and click on JOIN AFI to fill out the membership form.

Geographic area served: National / International
Publications: "Eye on Aniridia" (quarterly newsletter), "Aniridia and WAGR syndrome&quotbook by Jill Nerby and Jessica Otis, published by Oxford University Press available worldwide from Amazon, Barnes and Noble and publisher. Medical, scientific and real experiences from those with aniridia.

Staff

Jill Nerby, Executive Director

Aniridia Foundation International, is this page missing one of your services, events, programs, or announcements? Update your information for free.

Join Our Mission

Help us expand our resources for people with vision loss.