Browse By Topic: Caregiving

Driving on the Horizon: One Story of Parenting a Teen As a Visually Impaired Mother

The reality any parent will tell you is this: as children become teens, their abilities grow along with their independence. We must be there to guide but also to accept and take pride in their accomplishments. I did not expect the bittersweet reality of my daughter’s driving to overwhelm me as it did, but perhaps this story will reassure others that what you are feeling is normal. Driving on the Horizon: One Story of Parenting a Teen “You can come with us, Mom, but don’t freak out, because if you do, so will I.” These grudging words pave our way to my daughter Sophia’s third driving experience. The sapphire dusk is


A Time of Joy and a Time of Sorrow: Grandmothering Without Sight

Editor's note: This post is part of the Blind Parenting series created to provide visually impaired parents and grandparents with first-hand accounts of how you can raise a child safely and independently. In today's post, Sheila Rousey shares her experience of becoming a grandmother with vision loss. A Time of Joy and a Time of Sorrow: Grandmothering Without Sight by Sheila Rousey


A Grandma's Thoughts

Editor's note: This post is part of the Blind Parenting series created to provide visually impaired parents and grandparents with first-hand accounts of how you can raise a child safely and independently. In today's post, Mary Hiland shares the importance of teaching children how to interact with individuals who have low vision and how to build positive relationships. A Grandma's Thoughts By Mary Hiland, grandmother


Alzheimer’s, Vision Loss, and Caregiving

Editor's note: November is National Alzheimer's Disease Awareness Month. Stephanie McCoy, VisionAware Peer Advisor, relates her family's battle with the disease and her journey in becoming a caregiver as a person who is visually impaired. The Long Road to Diagnosis Twenty years ago Alzheimer’s took my grandmother. And now my mother has been diagnosed with it. Though the contrast of how the disease manifested itself between my grandmother and mother was significant, after consulting with my mother’s physicians, it seems that 13 years ago, the clock began ticking for my mother. While my grandmother lived with the most severe symptoms of Alzheimer’s for


Preparing for Pregnancy: A Blind Mother's Checklist Part 3, Resources and Services

Editor's note: This is part three of A Blind Mother's Checklist from the new series, Blind Parenting. Part 1 covered the basic questions to ask yourself when deciding to start a family. Part 2 reviewed the medical implications and various doctors a mother planning to get pregnant should have as part of her medical team. Preparing for


Preparing for Pregnancy: A Blind Mother's Checklist Part 2, Medical Implications

Editor's note: This is the second post in our new series, Blind Parenting. This series will provide you first-hand accounts of how other blind and visually impaired parents have used organizational strategies with adaptive techniques to parent safely and independently. This is part two of a three-part blog post. Read part 1 to determine if you are ready to start a family. Preparing for Pregnancy: A Blind Mother's Checklist Part 2 By


Preparing for Pregnancy: A Blind Mother's Checklist Part 1, Am I Ready?

Editor's note: This is the initial post in our new series on Blind Parenting. Our new Blind Parenting series will provide you first-hand accounts of how other blind and visually impaired parents have used organizational strategies with adaptive techniques to parent safely and independently. This post is divided into three parts with separate checklists: the first dealing with your personal situation, the second with medical implications, and the third dealing with resources and services that you need to consider. Preparing for Pregnancy: A Blind Mother's Checklist <img src="http://www.afb.org/image.asp?ImageID=7758"


Wind Chimes: Blessings From My Mom

It was a warm afternoon, so I slid open the patio doors and pulled out a patio chair to enjoy a few minutes of just being. Although it was warm, it was breezy, so the wind chimes hanging in the corner of the screened in patio were dancing and playing a simple but complicated tune. My feelings about those wind chimes were also complicated. The Entrance Last August, during the calling hours for my mother's funeral, our murmuring conversations were abruptly interrupted by the sound of clanging, clanging that was moving into the room. My first reaction was to be indignant. Why would somebody come clanging into this quiet room uninvited, and what on earth was that? Someone else jumped up and


Coping with Caregiving in Your Own Way: You Can Help

Editor's note: Amy Boviard's sister passed away this week and she asked that we share this post as a memorial to her sister who has just ended a long journey with illness. You may want to read other posts in our caregiving series. Amy Many of you are visually impaired and/or hearing impaired like me. (I have retinitis pigmentosa (RP) and Usher's Syndrome, a condition in which people with RP gradually lose hearing.) Or maybe your age impedes you from doing all that you want to do. Caring for and communicating with a family member


Thanksgiving and My Membership in the Sandwich Generation

As we enter the Thanksgiving season, this post about family caregiving and family values and traditions is particularly relevant. This post is also part of our Sandwich Generation Series. Three Generations in the Home As in most family interactions, there are more smiles than teeth grindings in being a grandparent who is called upon to help raise their grandchildren. This is especially true for a


Caring for the Caregiver through the Seasons

This post is part of our Sandwich Generation Series. Becoming The Unplanned Caregiver “Not all of us can do great things. But we can do small things with great love.” Mother Teresa Even though I was caring for a family of three young children and was helping my husband to establish a new business, I somehow fell into the role of caregiver for my mother-in-law. Eighty year old Vera arrived for a two week holiday and ended up living with us for seven years! During her visit, Vera had cried out


Scrabble: Staying in the Game

This post is part of our Caregiving series. My 98-year-old mother can’t remember what she had for lunch, but she knows the rules of Scrabble, comes up with obscure words that only avid crossword puzzlers know, and grabs those triple word scores with glee. Sometimes, she struggles to make a play, when the tiles in her rack don’t include a consonant, but anybody would. Last night, at one point during our


Being a Caregiver and Advocate When You Are Blind

This post is part of our Caregiving Series in honor of National Family Caregivers Month. Mother in Emergency Room There are times when I feel more blind than usual, and when my 98-year old mother was sent to the emergency room (ER), this was one of them. First, when I got the call from the assisted living home, I had to recruit someone to take me to meet Mom at the hospital. It was the Saturday of Memorial Day weekend. Fortunately,


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